Here is a chart of most of the relevant dates regarding Kraston’s treatments. As new events come along, I will update this timeline. I will also be writing about how these events came about in future posts.
If you haven’t read the beginning, be sure to read the page Intro To My Husband’s Glioblastoma (Brain Cancer) then read Newly Diagnosed Glioblastoma Treatment Options After Surgery.
| Date | Event | Doctor | Notes |
| 2/5/16 | PCP Appt. | Teter | Blood work normal. Referred to Neurologist |
| 3/2/16 | Neurologist Appt. | Edgar | Recommended CT Angio. |
| 3/10/16 | Head and Neck CT Angio | Edgar | Clean scan except for tiny aneurysm behind eye. |
| 3/30/16 | Neurologist Appt. | Edgar | Recommended follow up CT Angio in 1 Yr. |
| 5/16/16 | ED visit | Felton | Recommended CT. |
| 5/16/16 | Head CT wo Contrast | Felton | Abnormal CT scan of the brain with probable mass in the left parietal lobe measuring about 5.7 x 4.4 cm. Admitted to hospital with MRI recommended. |
| 5/17/16 | MRI Brain w wo Contrast | Rahhal | Neoplasm measures 6.1 cm AP by 5.0 cm transversely by 5.1 cm cephalocaudally. Referred to neurosurgeon. |
| 5/18/16 | Craniotomy | Rahhal | Tumor resection. |
| 5/19/16 | Head CT wo Contrast | Rahhal | |
| 5/20/16 | Medical Oncology Consult | Janjua | Diagnosed with Glioblastoma multiforme (WHO grade IV) |
| 5/23/16 | Discharged from hospital. | Bhat | |
| 5/26/16 | Radiation Oncology Consult | Garren | |
| 5/31/16 | Radiation Oncology Consult | Garren | CT Planning for radiation. |
| 6/1/16 | First Hand OT Appt | Started occupational therapy 2x per week for right hand sensitivity. | |
| 6/1/16 | Neurosurgeon Post-Op Followup | Rahhal | Recommended followup in 3 months. |
| 6/1/16 | Radiation Oncology Consult | Sack | Met with another radiation oncologist. Kraston like Dr. Garren better. |
| 6/3/16 | Medical Oncology Consult | Janjua | Planning for chemotherapy (oral temozolomide). |
| 6/7/16 | First radiation treatment | Garren | (33) radiation treatments scheduled. |
| 6/7/16 | First dose of temozolomide (TMZ). | Janjua | (46) 140mg doses scheduled. |
| 6/10/16 | Disoriented and fell in front yard. | Went to ED due to fall. Admitted to hospital. Missed radiation. Stopped TMZ while in hospital. | |
| 6/10/16 | Head CT wo Contrast | Stokes | Increasing mass in left parietal region associated with increasing (9mm) left-to-right midline shift and subfalcine herniation. The area of involvement measures up to 6.5 x 5.0 cm. |
| 6/10/16 | MRI Brain w wo Contrast | Marouk (on call for Rahhal) | Surgical bed demonstrating subacute hemorrhage and peripheral mural nodularity and massing consistent with neoplasm. The mural nodularity component measures approximately 5.5 x 2.6 x 4.2 cm. |
| 6/11/16 | Head CT wo Contrast | Maqbool (hospitalist) | The hypodense mass likely representing an old hemorrhage and/or post surgical changes and edema measuring 6.2 x 4.5 cm and the left posterior frontal lobe remain unchanged. |
| 6/13/16 | Discharged from hospital. | Maqbool | Prescribed high doses of dexamethasone. Would take ~8 weeks to taper off of it successfully. |
| 6/21/16 | First speech therapy appt. | Started speech therapy 1x per week. | |
| 6/24/16 | Medical Oncology Appt. | Janjua | |
| 6/29/16 | First Leg PT Appt | Started physical therapy 2x per week for right leg weakness. | |
| 7/15/16 | Medical Oncology Appt. | Janjua | |
| 7/25/16 | Last radiation treatment | Garren | 33 radiation treatments completed. |
| 7/25/16 | Last concurrent temozolomide | Janjua | 45 doses completed. |
| 8/1/16 | Last Leg PT appt. | ||
| 8/3/16 | Last Hand OT appt. | ||
| 8/5/16 | Medical Oncology Appt. | Janjua | |
| 8/25/16 | MRI Brain w wo Contrast | Rahhal | Measures 4.3 x 3.6 x 3.5 cm in diameter. No left to right midline shift. |
| 8/25/16 | Adjuvant Temozolomide – Cycle 1 | Janjua | 5 days of 280mg |
| 8/29/16 | Last speech therapy appt. | ||
| 8/29/16 | Neurosurgeon MRI Followup | Rahhal | Tumor area was smaller after radiation. |
| 8/30/16 | Radiation Oncologist MRI Followup | Garren | filled out application for Optune device. |
| 9/19/16 | Started Optune device | Garren | Trained and put on first arrays. |
| 9/25/16 | Adjuvant Temozolomide – Cycle 2 | Janjua | 5 days of 280mg |
| 10/7/16 | Medical Oncology Appt. | Janjua | |
| 10/25/16 | MRI Brain w wo Contrast | Rahhal | |
| 10/25/16 | Adjuvant Temozolomide – Cycle 3 | Janjua | 5 days of 300mg (increased dose due to weight gain) |
| 10/31/16 | Neurosurgeon MRI Followup | Rahhal | MRI looked the same as in August. |
| 11/1/16 | Radiation Oncologist MRI Followup | Nguyen (on call for Garren) | |
| 11/25/16 | Adjuvant Temozolomide – Cycle 4 | Janjua | 5 days of 300mg |
| 12/2/16 | Dropped and broke Optune device | Garren | Went without Optune for over 24 hours until new device arrived. |
| 12/7/16 | Medical Oncology Appt. | Janjua | |
| 12/25/16 | Adjuvant Temozolomide – Cycle 5 | Janjua | 5 days of 300mg |