Glioblastoma Survivors And Their Blogs

As the wife of a Glioblastoma survivor of only 8 months (so far), I am curious how this disease affects people’s lives. Since Survival With Kids is slowly morphing into a blog about Glioblastoma (at least for now), I thought I would research other blogs written by Glioblastoma survivors and/or their spouses.

Below is my compilation of both the active and inactive blogs that I have found so far. If you know of any others, please leave me a comment with a link to their blog and I will add them to this list.

Active Glioblastoma Survivor Blogs

These are active / websites blogs. The person with Glioblastoma is still alive and either they or their spouse are providing updates on a regular basis.

Beth Carlton

• Diagnosed in June 2015.
• Current Status: 19+ Month Survivor.
• Website: https://braintumorjourney.wordpress.com/

Kraston Colby

• Diagnosed in May 2016.
• Current Status: 8+ Month Survivor.
• Website: http://SurvivalWithKids.com/

Cheryl Broyles

• Diagnosed in June 2000, at age 33.
• Current Status: 16+ Year Survivor.
• Recurrences: 6 recurrences, so far.
• Website: http://www.cherylbroyles-gbm.com/AboutCheryl
  • Regular updates on facebook: https://www.facebook.com/Glioblastoma-Brain-Tumor-Survivor-122783647791261/

Mike Emmons

• Diagnosed in June 2012.
• Current Status: 4+ Year Survivor.
• Website: https://gbmblog.com/2017/01/03/new-year/

Jennifer Parry

• Diagnosed in 2005, at age 28.
• Current Status: 11+ Year Survivor.
• Website: https://gbmsurvivor.wordpress.com/about/

Inactive Glioblastoma Survivor Blogs

These websites / blogs were active for some time but are inactive. Most explicitly state that they are inactive now due to the one with Glioblastoma passing on, but some seem to have just petered out. They all provide insight about their journey with this disease.

Rob Holt

• Diagnosed in February 2015.
• Current Status: Passed away in July 2016. 17 month Survivor.
• Website: http://www.robholtfamily.com/

Ken Maudsley

• Diagnosed in August 2011, at age 41.
• Current Status: Passed away in June 2013. 22 month Survivor.
• Website: https://glioblasted.com/

Krista

• Diagnosed in December 2005.
• Current Status: Passed away in December 2010. 5 Year Survivor.
• Website: http://onkristasmind.blogspot.com/

Ryan

• Diagnosed in December 2012, at age 27.
• Current Status: 4+ Year Survivor.
• Website: http://www.ryansepicbattle.com/blog/

Sadie

• Diagnosed in March 2006, at age 15.
• Current Status: Passed away in February 2007. 11 month Survivor.
• Website: http://www.sadies-brain-tumor.org/sadies-story/

Ted Washburne

• Diagnosed in May 2006.
• Current Status: 10+ Year Survivor.
• Website: http://www.livingwithbraincancer.net/p/without-prayer.html