Last January I wrote several posts about my husband’s brain cancer. Things seemed to be going well enough.
Unfortunately, in late March, his MRI showed some re-growth. He was, statistically, pretty much average for the number of months one with Glioblastoma undergoing the Optune treatment lives without a recurrence.
So we sought out a very experienced surgeon in Oklahoma City to discuss surgery. Dr. Michael Sughrue is a neurosurgeon experienced with Awake Brain Surgery. He and his team of physical and speech therapists were able to assess his speech and hand activity during surgery in order to minimize the effects of surgery on those brain functions.
I imagine I will post more about our experiences during this time in the future, but that is not the purpose of this post.
This post is to record that my husband’s incision from that second brain surgery became infected about two weeks post-op. So if you are reading this and wondering how he is doing, I am sorry to report that his body could not fight that infection. He was declared brain dead at 18:18 on April 20. I intended to go into more detail about this experience in this post, but I find that I am not quite ready.
I moved about a month ago in order to be closer to my parents, closer to my kids’ schools and to give each kid their own room. To give us a bit more breathing room as we grieve. To give us a bit of space from the memories at our old house.
Every day when I walked through the front door of the old house, I remembered coming home and seeing him throwing up on the front porch the day before he died. Part of my mind started to drift to the ambulance ride and the ED visit. The stay in ICU. I just can’t dwell there every single day.
Work and Workouts
Next week, I am reducing my hours at work again. I will be taking some time to unpack at the new house. Taking some time to get my paperwork caught up and filed away.
I am also moving my workouts from the evening time to the day time. My 3 year old has developed some anxiety when I leave the house at night.
“Are you leaving, Mommy?” he asks me every night now. So now I can start to reassure him that, no, I am not leaving tonight. I have to keep working out though. It is kind of a mental health thing. The endorphins really help me keep from feeling down. So now I’ll just workout during the day.
I’ll take more naps. and when I’ve got that routine in place, I’ll start writing more blog posts. I have grand ambitions of creating a following here. Creating some opportunities here. My day job doesn’t quite fulfill me the way that it used to. So we’ll see what blogging does for me.
So if you want to know more, share this post and encourage me with the page views. I’d also love to hear your thoughts below, if you are inclined to comment.
Have a blessed day!